About
My name is Cooper and I was born September 8th, 2007. I live on Long Island with my mom and dad and my older sister Camryn and my older brother Colby. No, I don’t know what’s up with the “C”s – for that you’ll have to ask my parents.
I was born with Osteogenesis Imperfecta or brittle bone disease. It means that my bones can break very easily from little or no apparent cause. So far (as of 4/8 at least) I’ve broken 6 bones. There is no cure for OI but I am getting a pamidronate treatment once every 8 weeks. It’s an experimental treatment that should help to strengthen my bones and reduce the number of breaks.
I started this blog so I could share my story with everyone, especially others who may have this disease and most especially with the parents of other children with OI. In spite of my condition I’m a very happy kid. I’ve started playing with my toes and I can roll over (so far without breaking anything).